Colin is back in a good mood...for a few days at least so we decided to post some pictures again....Sorry to all who check it everyday....we promise to post more often......
Isn't he getting so big?? He's up to 25# and 30 1/2" long!! Colin has gained 7 lbs and 3 1/2 inches in length since we've been home from Boston!! Now we were told (again) at our Friday office visit that Colin's echo is still unchanged and his heart doesn't look any better. But, all Tim and I heard was blah, blah, blah because Colin has never looked better to us than he has the past couple of weeks. So many positive things are happening for Colin:
1) He's growing like crazy.
2) He loves his therapy and is gaining strength and endurance every session.
3) He is so interested in all of his toys and will play and play all day.
4) He is on less diuretics than he has been on in a year.
5) He is getting the most calories that he has ever gotten in his life (and tolerating this).
6) He is throwing up a lot less (about 2x/day) and most of the time he gags himself.
7) He is able to tolerate being on his stomach.
8) He is starting to babble a lot-sometimes too much at 2 am!!
So, Tim and I are really encouraged by all of Colin's progress. We know that he is getting better. We can just tell by everything that he is doing. Plus, we have to keep reminding each other what we were told by Boston before we left....it is going to take a LONG time for Colin's heart to show improvement. Dr. Freed stressed that we needed to have a LOT of patience.
Enjoy the pictures and the video!!
Look at me standing!!

Look I'm starting to move!! (wait for the little smile at the end....wait for it....wait for it...)