Colin is happy today but, mommy isn't!! We took Colin to get his feeding tube replaced and guess what??? No one ordered the right one!! We were so mad. Why does Colin have to do everything twice??? It's rescheduled for Friday IF they get the tube in by then-we will be calling to confirm this time!!
We bumped Colin's feeds up to 40 mL's/hour from 36 since he was off his food for the tube change and we are trying to make up for the lost calories. I'm still crossing my fingers that he will tolerate the increase.....
Dr. K is still wonderful to us though! Don't know what we would do without him. Can't wait for the day that he tells us that Colin's echo shows signs of improvement!! Colin is officially done with his Ativan & Methadone. He has been released from the drug clinic and we are so happy.
AND...we have received so many gifts/donations from family and friends and we are so thankful. We would especially like to thank all of the children at The Gingerbread House Daycare Center for contributing their Lenten gift to Colin this year. In a few months, Colin will be in to personally thank all of you!!
Hopefully, Colin can show off his fancy new tube on Friday!!
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Sorry he didn't get his new tube put in...we'll cross our fingers that FRIDAY is your day!!!
ReplyDeleteSo...you have Colin on continuous feeds?? Isaac's on every 4 hour feeds...they both have their pros and cons I suppose...GOSH..I wish TPN wasn't bad for the body...I'd much rather put it in his veins (then he couldn't throw it up all the time!)
What sensitive little men we have...their wives will love it!!!
So...you guys should just plan on coming out to Vegas this summer. We'll have a BIG FAT heart convention! Yeah..you know Terri...she's here. Maybe YOU could get her out of her house..I have to BEG to get her out!
Hope you guys have a calm day and the button is ready for you tomorrow...good luck!
(oh...and that Colin tolerates his feeds today!)
Lots of hugs your way,
Kathy
Oh no! That is so irritating. I really hope they get things figured out so you don't have to wait any longer.
ReplyDeleteColin, we're thinking about you!
What a bummer that they didn't have the right size. Hopefully no one dropped the ball for Friday! As Kathy asked - is Colin on continuous or bolus feeds? Vaeh is on bolus during the day (every 3 hours) and on continuous at night, and she, too, is a puker! Some days better than others. I can't wait for the day that she'll just eat like a normal girl & we can ditch the button for good! Good luck on Friday & we'll be praying for you!
ReplyDeleteBunches of hugs!
Tina:0)
Hi Tim, Mel and Colin, I hope that all went well today and that Colin was able to get the mickey button.
ReplyDeleteLove, Auntie Sue
Well Melanie...
ReplyDeleteDid you get the button today??
Just checking on you guys!!!
Have a fun weekend!!! It's FRIDAY..yippie...that's pizza night at our house (no cooking!!!)...
Kathy