Memorial Mass

Not sure if anyone is still checking, however we will be having a memorial mass on November 1st at 11:00 a.m. for Colin at the following address:

Sacred Heart Church

8229 Brewerton Rd

Cicero, NY 13039

Following the mass will be a lunch served in the basement. Please feel free to attend if you would like. The more the merrier to celebrate Colin's life.

Colin Charles Domanico 8/31/06 - 9/21/08

This is a post that I dreaded that I would never have to make... I have no quirky lines... On Sunday September 21, 2008, Colin passed away at home. His heart had all it could take and decided to rest. Melanie and I want to thank all of you for experiencing this journey with us on the blog. Your support through comments were truly uplifting and inspiring. We also want to thank his doctors for never giving up on him and giving him as much as a life as possible, especially Dr. Kvesilis. As a final note for the blog, I created a video of his life. The pictures will stream by fast, but as you can imagine it is hard to cram so many photo's of our little boy into a 4 minute song...... If you would like to contact us, you can leave a post on the blog as we will check it from time to time or you can email me at Sugrlof95@aol.com. Colin is now at peace with god with no pain, walking, eating, smiling, laughing, and growing.....All the things he had such a difficult time with battling here with us. Melanie and I have now taken his pain and he is free. He is up in heaven with his Great Grandma Agnes playing board games....Talking and eating baked goods with his Great Grandma Marge....Playing with a cap gun that his Little Great Grandpa Domanico got for him.....and waking up to his Big Great Grandpa Bould singing "Good Morning Mr. Zip Zip Zip.............Mommy and I love you so much Colin......

A Weekend Of Football.....

Colin had an action packed weekend of football, both college and pro. On Saturday he watched a pitiful Syracuse Orange football team get whipped by Akron...They have hit rock bottom so he may not wear the jersey too much as he can't take the ribbing from his Uncle Brian (an avid Uconn Husky fan). Here is the photo:

(PS - Thanks to Uncle Alex and Aunt Jamee for the jersey)

Then today, me and Colin dressed up in our Buffalo Bills uni's for their first game of the season against Seattle. Well, for the first time in Colin's life, the Bills won the opener. Colin was excited as he wore his new Trent Edwards (QB) jersey. Daddy still has his old McGahee jersey until he gets to the store to buy a new one.

Colin's Birthday Party

Sunday was Colin's second birthday party. We had a party at our house for Colin and he got a lot of really nice gifts. The weather was perfect and the food was good. Instead of putting on pictures, I wanted to make a video of Colin's year starting with his first birthday. It is a little over 3 minutes long and has music to it so watch the volume on your speakers if you are at work. Oh yea the pictures at the end are from his party....Happy 2nd birthday buddy......




PS - The video is fixed now... I had it marked as private....

Michael Phelps??

Well maybe not.....Yet.... Today Colin had his 2nd pool therapy class. He made us so proud as he works so hard and never complains. Nothing ever comes easy to him, (except yelling) but he has more determination then Mel and I will ever have.... Here are the photo's from poolside.....

Colin is just letting everyone know who's boss....He likes to intimidate before he gets in the pool....

Colin looks like he is sucking up to his teacher....He got excited when it was his turn...

It appears that Colin is romancing his teacher......He has all the ladies eating out of his hands.... (actually she is stretching is legs)

Standing in the Pool.......

Colin on all fours on a mat.....Lift that head buddy!!!

Here is a little video to finish off the post......Stay tuned for next week he will learn knee dives and flip turns......

Good Week

Sorry for the lack of updates but, it's not because Colin hasn't been happy. In fact, it's just the opposite!! Colin has given more smiles in the past week than he has in his entire life!! All day long Mommy gets smiles. I always adored my serious Colin but, happy Colin is so much fun!!

Colin started Pool Therapy last week and he did fantastic! We are so proud of him. He was in a new place with a new therapist and the pool was huge!! I stayed by the pool the whole time but, he barely looked at me and he had so much fun. I am amazed at how fearless he is (of course he did go through 3 heart surgeries so a pool is a walk in the park).

Colin has been on a 22 hour feed for the past week and so far so good. It's been nice to take him places without the food backpack. His mysterious temps are getting better-we haven't hit 102 in a week!! Colin is sleeping great again too.

This weekend is Colin's 2nd birthday and a huge milestone. This past year has been extremely difficult for Colin and we are so happy that we are able to celebrate another birthday. Colin is getting a Wiggles cake!!

Another huge event for Colin is coming up in a few weeks. He will be the ringbearer in Uncle Alex and Aunt Jamee's wedding. He tried on his tux jacket this weekend and it fit perfectly (except for the arms!!) It's a 2T and I was nervous that it would be too big but, he looked so handsome. Colin also proved that he's sneakier than we all think this weekend. Uncle Al and Aunt Jamee babysat Colin for a few hours and he managed to get away without taking a nap!! When they put him down he threw up a little and then smiled-well he got picked up after that!! He has them wrapped around his finger!!

On a sad note, Colin's favorite sports talk duo, Mike and the Mad Dog broke up after 19 years, so he can no longer watch them on YES. The picture below is an old photo of Colin watching his buddies........

Colin Has An Announcement !!!!!!!!!!!!!!!!!!!!!!!!!!

Ok....So Colin has been holding a secret over the past 16 weeks....as you know with his poker face it is really easy to do....but now he is ready to share the secret with all of our friends.......

Colin is holding ultrasound pictures..................

Of his baby..................

Brother..........YAY.....

Yes...there will be another scream in the house at 2 a.m. Melanie is due Feb 2nd so....hopefully it won't look like this on the way to the hospital.....

PS - Mel and baby are doing very well....
PSS - The level 2 ultrasound showed that the baby has a 4 chambered heart and a pulmonary artery....a more detailed Fetal Echo is scheduled in 1 month.